Youtube VLOGS - Most Recent Videos

I discuss whether or not patients with SMA should take the COVID-19 vaccine.  

I share my thoughts on how to tell people to quit giving you their unwarranted and unwanted opinions.

I discuss how some SMA patients may experience gastrointestinal issues while on an FDA approved treatment for SMA.

I discuss one of the positives that came from the COVID-19 Pandemic. 

I discuss the importance of finding a pulmonologist and having your PFTs.

I discuss the steps I took to get approval to start my Evrysdi treatments.

I discuss the steps I took to get approval to start my Evrysdi treatments. 

I discuss how opinions of pharmaceutical companies have changed over the past years.

I discuss the possibilities of a future combination therapy for those of us with SMA.

I discuss some frequently asked questions [FAQs] regarding Evrysdi.

I discuss the differences between Spinraza and Evrysdi (risdiplam).

I discussed the recent FDA approval of risdiplam. [Now known as Evrysdi]

This is a collection of every video I have produced on my Youtube channel. These videos are in descending order. 

This is a collection of the videos I produced using my GoPro Hero 5 Black camera. These videos are in descending order. 

This is a collection of the videos I produced concerning practical problems.  These videos are in descending order. 

This is a collection of the videos I produced as I went through my four loadind doses of Spinraza.  These videos are in descending order.

This is a collection of the videos I produced as I go through my maintenance doses of Spinraza. These videos are in descending order.