Youtube VLOGS - Most Recent Videos

I’m giving everyone an update with regard to my physical therapy. 

I discuss pressure sores and pressure ulcers for those of us with SMA.

I discuss the pros and cons of SMA treatments.  

I discuss the FDA’s decision to award fast-track status to Scholar Rock’s potential treatment, apitegromab.

I answer 5 questions there were posted under some recent YouTube videos.

I discuss a rare blood disorder that was recently added to the warning label for Zolgensma. 

I discuss Scholar Rock’s decision to take apitegromab to a pivotal phase 3 trial. 

I discuss Scholar Rock’s US patent for their new potential therapy known as apitegromab.  

I discuss the reality of what Spinraza and Evrysdi  ACTUALLY do for those of us with SMA. 

I discuss my choice to switch back to Spinraza after starting Evrysdi.

I discuss a new potential therapy that will boost the amount of SMN protein in the SMN2 gene.

I discuss exciting news regarding Scholar Rock’s potential therapy, once known as SRK-015, now known as apitegromab.  

This is a collection of every video I have produced on my Youtube channel. These videos are in descending order. 

This is a collection of the videos I produced using my GoPro Hero 5 Black camera. These videos are in descending order. 

This is a collection of the videos I produced concerning practical problems.  These videos are in descending order. 

This is a collection of the videos I produced as I went through my four loadind doses of Spinraza.  These videos are in descending order.

This is a collection of the videos I produced as I go through my maintenance doses of Spinraza. These videos are in descending order.