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    • Home
    • PODCASTS
    • Youtube VLOGS & Playlists
    • SMA ARTICLES
      • SMA Articles
      • Apitegromab Articles
      • Evrysdi Articles
      • Spinraza Articles
      • Zolgensma Articles
    • PT ARTICLES
      • Dr. Laura Mata, DPT / OTL
      • Emily Jones, PTA
    • Photo Gallery
    • Pharmaceutical Companies
      • Avexis Info
      • Biogen Info
      • Cytokinetics Info
      • Novartis Info
      • Roche Info
    • SMA Definitions
    • Downloads
      • PowerPoint PDF Files
      • Webpage PDF Files
    • Helpful Links
    • High Protein Foods
  • Home
  • PODCASTS
  • Youtube VLOGS & Playlists
  • SMA ARTICLES
  • PT ARTICLES
  • Photo Gallery
  • Pharmaceutical Companies
  • SMA Definitions
  • Downloads
  • Helpful Links
  • High Protein Foods

Youtube VLOGS - Most Recent Videos

Video #256

Video #256

Video #256

I’m discussing an issue that may affect quite a few people with SMA. 

Video #255

Video #256

Video #256

I’m discussing the differences between PICC lines and ports.

Video #254

Video #256

Video #254

I’m sharing information regarding  Scholar Rock’s phase 3 clinical trial known as SAPPHIRE. 

Video #253

Video #253

Video #254

I’m sharing information with everyone with regard to my condition. 

Video #252

Video #253

Video #252

I discuss how Scholar Rock will take their treatment, Apitegromab, to a phase 3 trial.  

Video #251

Video #253

Video #252

I discuss where I see the future of SMA treatments going in the coming years.

Video #250

Video #250

Video #250

I explain a mistake that I made before going in for my recent Spinraza injection.  

Video #249

Video #250

Video #250

I’m giving everyone an update with regard to my physical therapy. 

Video #248

Video #250

Video #248

I discuss pressure sores and pressure ulcers for those of us with SMA.

Video #247

Video #247

Video #248

I discuss the pros and cons of SMA treatments.  

Video #246

Video #247

Video #246

I discuss the FDA’s decision to award fast-track status to Scholar Rock’s potential treatment, apitegromab.

Video #245

Video #247

Video #246

I answer 5 questions there were posted under some recent YouTube videos.

To view all of my videos, click on the link below.

MY YOUTUBE Channel

Youtube Playlists

This is a collection of every video I have produced on my Youtube channel. These videos are in descending order. 

This is a collection of the videos I produced using my GoPro Hero 5 Black camera. These videos are in descending order. 

This is a collection of the videos I produced concerning practical problems.  These videos are in descending order. 

This is a collection of the videos I produced as I went through my four loadind doses of Spinraza.  These videos are in descending order.

This is a collection of the videos I produced as I go through my maintenance doses of Spinraza. These videos are in descending order.

This website was created by smajourney51 and its developer, Michael P. Morale.  The name smajourney51 and its corresponding logo are not to be used in any other website, YouTube channel or any other social media account without the express written consent of smajourney51.  No videos on the smajourney51.com website or the smajourney51 YouTube channel are to be used in any other website, YouTube channel or any other social media account without the express written consent of smajourney51.  All links, videos, graphics, personal opinions and advice are meant for informational purposes only.  Subscribers and followers to my website, YouTube channel, Facebook page, Twitter account and Instagram account should consult their personal physician for any medical advice.  The information that I provide in the above listed social media sites are my own personal opinion, and should not be used by any of my subscribers and followers when making medical decisions.


Copyright © 2021 smajourney51-All Rights Reserved.

SMA TO A-OK PODCAST

This podcast deals with the topic of depression and anxiety. I did this podcast because I feel that this is a topic that many of us in the SMA community will have to deal with at some point in our life. This podcast explains my journey with depression, in my hopes and prayers are that it will help someone who’s listening to it.