Youtube VLOGS - Most Recent Videos

I’m discussing an issue that may affect quite a few people with SMA. 

I’m discussing the differences between PICC lines and ports.

I’m sharing information regarding  Scholar Rock’s phase 3 clinical trial known as SAPPHIRE. 

I’m sharing information with everyone with regard to my condition. 

I discuss how Scholar Rock will take their treatment, Apitegromab, to a phase 3 trial.  

I discuss where I see the future of SMA treatments going in the coming years.

I explain a mistake that I made before going in for my recent Spinraza injection.  

I’m giving everyone an update with regard to my physical therapy. 

I discuss pressure sores and pressure ulcers for those of us with SMA.

I discuss the pros and cons of SMA treatments.  

I discuss the FDA’s decision to award fast-track status to Scholar Rock’s potential treatment, apitegromab.

I answer 5 questions there were posted under some recent YouTube videos.

This is a collection of every video I have produced on my Youtube channel. These videos are in descending order. 

This is a collection of the videos I produced using my GoPro Hero 5 Black camera. These videos are in descending order. 

This is a collection of the videos I produced concerning practical problems.  These videos are in descending order. 

This is a collection of the videos I produced as I went through my four loadind doses of Spinraza.  These videos are in descending order.

This is a collection of the videos I produced as I go through my maintenance doses of Spinraza. These videos are in descending order.