Leg, Foot & Neck Flexation Results

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02/12/19 - I went in for my reevaluation on Tuesday, February 12. Overall, Emily and I were pleased with the results that we received.

LEGS:  The goal with my legs are to get them as straight as possible, which means that we are trying to get to 0°. During my reevaluation in February, My left leg remained the same at -23°. My right leg improved by 2°, going from -25° to -23°.

FEET:  Like my legs, the goal is to get my feet is close to 0° as possible with regards to the ability of flexing them back up toward my body. My left foot improved by 3°, going from -29° to -26°. My right foot improved by 1°, going from -28° to -27°. While my right foot has been around -27° and -28° since the beginning of my exercises, my left foot has improved quite a bit since the beginning. In October of last year, my left foot was at -34°, and in my last reevaluation, I was at -26°.

NECK:  The goal with my neck is to improve the amount of rotation and side bending so that I can look further to my left and to my right, and to improve the amount that I can bend my neck from side to side. The rotation in my neck when looking to my left increased by 4°, going from 25° to 29°. When bending my head to the left, these numbers were 4° less that my last reevaluation. I went from 24° in January to 20° in February. This could have been because my neck muscles were tight, but we will continue to work on these muscles to keep them loose. The rotation when looking to my right decreased by 1°, going from 19° to 18° and when I bend my neck to the right, these numbers were 1° less that my last reevaluation in January, going from 14° in January to 13° in February.

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01/15/19 - I went in for my reevaluation on Tuesday, January 15. While the measurements of my dorsiflexion in my feet were slightly worse, the rest of my measurements improved.

LEGS:  The goal with my legs are to get them as straight as possible, which means that we are trying to get to 0°. During my reevaluation in January, my left leg remained the same at -23°. My right leg improved by 1°, going from -26° to -25°.

FEET:  Like my legs, the goal is to get my feet is close to 0° as possible with regards to the ability of flexing them back up toward my body. My left foot worsened by -4°, going from -25° to -29°, and my right foot went from -27° to -28°. My ankles were quite swollen again during this reevaluation like they were in December. Laura sent a note to a medical device company for two dorsiflexion braces, one for each of my feet. These braces will help flex my feet back up toward my body, and Laura wants me to wear these for one or two hours each day. Laura said that this would definitely improve my measurements with regards to my feet and my ankles. I am waiting on my doctor to sign off on this request, and I will keep everyone updated with regards to the status.

NECK:  the goal with my neck is to improve the amount of rotation inside bending so that I can look further to my left and to my right, and to improve the amount that I can bend my neck from side to side. The rotation of my neck when looking to my left decreased by 1°, going from 26° to 25°. The side bending improved by 2°, going from 22° to 24°. The rotation of my neck when looking to my right increased by 2°, going from 17° to 19°. The side bending improved by 2°, going from 12° to 14°. I was extremely pleased with these results.

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12/18/18 - I went in for my reevaluation on Tuesday, December 18. While some of my measurements improved, I was extremely disappointed with the results of my last reevaluation.

LEGS:  The goal with my legs are to get them as straight as possible, which means that we are trying to get to 0°. During my reevaluation in December, my left leg increased in the amount of negative degrees bending. In November, my extension was -21°, and in December, my extension was -23°. In my right leg, my November results were -27° and my December results were -26°. While my left leg increased in the amount of negative bend by 2°, my right leg improved by 1°.

FEET:  Like my legs, the goal is to get my feet as close to 0° as possible with regards to the ability of flexing them back up toward my body. The results that we got during the reevaluation process on my feet were very disappointing. During November, the amount of dorsiflexion in my left foot, which is the amount of degrees that I'm able to flex my feet in an upward position was -19°. In December, the amount of dorsiflexion in my left foot increased to -25°. In my right foot, my November results were -26° in my December results were -27°. While the amount of dorsiflexion only increased by 1° in my right foot, I had a -6° increase in the amount of dorsiflexion on my left foot. During the reevaluation process, Laura told me that the amount of swelling in my ankles was significantly greater during this reevaluation process compared to the other two in October and November. My internist had prescribed hydrochlorothiazide to help with the swelling in my ankles, and unfortunately, I had not been taking these pills like I was supposed to. By not taking these pills, this caused my ankles to be swollen which negatively affected the results that we got during my reevaluation process in December. I will be taking these hydrochlorothiazide pills on a regular basis from now on and I'm sure that my reevaluation in January will be much better than they were in December.

NECK:  The goal with my neck is to improve the amount of rotation and side bending so that I can look further to my left and my right, and to improve the amount that I can bend my neck from side to side. The rotation of my neck when looking to my left decreased by 4° in December, compared to my results that I got in November. In November, I was able to rotate my head 30° to the left, and in December, I was only able to rotate my neck to the head 26°. In November, I was able to bend my head to the left 23°, and in December, I was able to bend my head to the left 22°. In November, I was able to rotate my head to the right 25°, and in December, this number decreased to 17°. In November, I was able to bend my head to the right 13°, and in December, I was able to bend my head to the right 12°. While the side bending to both my left and right only decreased by 1°, my rotation when looking to my left decreased by 4° and my rotation when looking to my right decreased 8°. While I was disappointed in these results, Laura told me that I needed to work more on my rotation and side bending on my neck at home and to get my caregiver to work with me on this during the next month.


While I was disappointed in some of the results that I got, my core strengthening exercises yielded better results and while I still have a lot to work on, I feel that Laura and I are on the right path.

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11/20/18 - When I went for my reevaluation on Tuesday, November 20, you'll notice that some of my measurements improved while some of them appear to be worse.

LEGS:  The goal with my legs are to get them as straight as possible, which means that we are trying to get to 0°. My left leg improved by 6° and my right leg improved by 13°. While this may seem to be a significant change, the first time that we took these measurements, Laura did not flex my leg as straight as possible before taking the measurements. During my last reevaluation in November, Laura placed my foot on her leg while she sat in front of me and she then pushed on my knee to get my leg as straight as possible before taking these measurements. During my next reevaluation in December, we will get a better representation as to how much improvement occurred.

FEET:  The goal with my feet are to get them as straight as possible, which means that we are trying to get to 0°. The measurements in both of my evaluations were taken while I was sitting straight up and Laura was flexing my feet with her hand and taking these measurements. My left foot improved by 15°, which is a significant improvement. My right foot improved by 2°.

NECK:  The goal with my neck is to improve the amount of rotation and side bending so that I can look further to my left and to my right and to improve the amount that I can bend my neck from side to side. During the first evaluation in October, I was laying down on my back on the therapy table while Laura took these measurements. In my reevaluation in November, I was sitting in my wheelchair while taking these measurements. Both rotation and side bending improved by 2° when looking and bending my head to my left. When rotating and bending my head to the right, it appears that the rotation improved by 13° and the side bending worsened by 12°. Again, during the first evaluation in October, I was laying down on my back on the therapy table while Laura took these measurements. In my reevaluation in November, I was sitting in my wheelchair while taking these measurements. Laura explained that the decrease in my side bending when bending my head to the right, was probably due to the fact that I was sitting up and not laying down like I had been during the first evaluation. She said that while I was sitting up during the 2nd reevaluation in November, the weight of my head would cause these numbers to be different because she said that during the first evaluation in October, while I was laying down flat on my back on the therapy table, this removed all of the pressure of the weight of my head, thus allowing me to bend my head further to my right side. During my next reevaluation in December, we will get a better representation as to how much improvement occurred.


Every 4 weeks when I go in for my reevaluation, I will update these numbers so that you can see my progress.

Spinraza Test Results

Explanation of Results

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Partial Thromboplastin Time (PTT) Detects coagulation disorders. It helps to ensure that the patient isn’t at risk of hemorrhaging.

Prothrombin Time (PT) measures how long it takes for blood to clot.

Prothrombin INR (PT INR) is another measure of the speed of blood clotting.

Total Protein, Random Urine checks liver and kidney functions.

Platelet Count ensures the proper number of red blood cells are present for clotting.


In Video #114, I stated doctors found a tinge of blood in my cerebral spinal fluid (CSF). I explain why I feel they found blood, but will post what my doctor tells me once I hear from her.


UPDATE FROM DOCTOR - On Monday, Nov. 20th, 2017 at 11:00 AM, my doctor's nurse responded with the following:   Sometime when providers attempt to access the subarachnoid space to withdraw spinal fluid, they may need to reposition the needle to access the correct space. This may cause some bleeding at the initial puncture which may cause bleeding. Nothing to worry about.